Haywire

Living with a TBI…some days are pretty normal …until they’re not. Yesterday was a really great day, but was incredibly busy. By 6pm, my balance was shot, and my eyes were extra crazy (the doctor says it’s like Sundowners…worse as my battery depletes throughout the day). Thankful that Emma can recognize when I’m really struggling and need help, by giving me her arm to help me walk straight or to drive when I shouldn’t. ⠀

I knew I was tired this morning, but didn’t quite expect the meltdown that reviewing a printed out word document in a meeting would trigger. (I must’ve been on the edge, and usually read on my laptop as it’s all filtered down for me. White papers and reading are brutal and can equal nausea).

The remainder of my day was a battle to calm my sympathetic nervous system down as it went completely haywire. Fatigue, dizziness, headache, overheating, and so many tears …today’s version even came with nausea and vomiting.⠀

This doesn’t happen often, but it stops me in my tracks when it does. I struggle constantly with all the things I want/need to do and with prioritizing time for recovery, while taking work into account. When I feel “good” it’s such a slippery slope, so easy to overdo…and then I find myself in bed at 7pm like tonight, feeling shattered and reflecting on how I got here.⠀

I realize I look like I’m “better”, and I am so much better than I was, but please be patient with me if I have to decline an invite, if I forget something, or have a special request. ⠀

I’m really trying to get back to “normal.” ⠀

But I’m still recovering, and need a lot of Grace. Thank you all for your continued prayers and thank you Jesus for leading me through this battle and allowing me to use this struggle to help others.

Go Bless.💕

Btw, that juice in my hand was SO good!

Grapefruit, pomegranate, carrot, and apple.

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